Publications

Breast (Edinburgh, Scotland)

DCIS knowledge of women choosing between active surveillance and surgery for low-risk DCIS.

01-10-2024

Journal of genetic counseling

Psychosocial issues of individuals undergoing surveillance for increased risk of melanoma and pancreatic cancer due to a germline CDKN2A variant: A focus group study.

01-10-2024

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Quality of life issues in patients with ductal carcinoma in situ: a systematic review.

01-10-2024

Plastic and reconstructive surgery

Efficacy of a Decision Aid in Breast Cancer Patients Considering Immediate Reconstruction: Results of a Randomized Controlled Trial.

01-10-2024

Familial cancer

Attitudes toward genetic testing, family planning and preimplantation genetic testing in families with a germline CDKN2A pathogenic variant.

01-08-2024

International journal of surgery (London, England)

Recurrence of breast cancer after reconstruction with macro-textured silicone breast implants: A retrospective cohort study.

26-06-2024

Analytical biochemistry

An LC-MS/MS-based method for the simultaneous quantification of melatonin, cortisol and cortisone in saliva.

01-06-2024

Journal of genetic counseling

Does a proactive procedure lead to a higher uptake of predictive testing in families with a pathogenic BRCA1/BRCA2 variant? A family cancer clinic evaluation.

01-06-2024

Annals of epidemiology

Strategies to increase survey participation: A randomized controlled study in a population of breast cancer survivors.

01-06-2024

Familial cancer

Men with metastatic prostate cancer carrying a pathogenic germline variant in breast cancer genes: disclosure of genetic test results to relatives.

01-06-2024

European journal of cancer (Oxford, England : 1990)

Active surveillance versus treatment in low-risk DCIS: Women's preferences in the LORD-trial.

01-10-2023

Patient education and counseling

Effects of a pre-visit online information tool about genetic counselling for ovarian cancer patients, a randomized controlled trial.

01-08-2023

Annals of surgical oncology

Surgical Oncologists and Nurses in Breast Cancer Care are Ready to Provide Pre-Test Genetic Counseling.

01-06-2023

Annals of epidemiology

The Areola study: design and rationale of a cohort study on long-term health outcomes in women with implant-based breast reconstructions.

01-06-2023

Breast (Edinburgh, Scotland)

Patients' experiences with pre-test genetic counseling provided by breast cancer healthcare professionals: Results from a large prospective multicenter study.

01-06-2023

BMC cancer

Mainstream germline genetic testing in men with metastatic prostate cancer: design and protocol for a multicenter observational study.

30-12-2022

International journal of gynecological cancer : official journal of the International Gynecological Cancer Society

Psychological impact of referral to an oncology hospital on patients with an ovarian mass.

13-12-2022

Journal of sleep research

Single-item chronotype is associated with dim light melatonin onset in lymphoma survivors with fatigue.

01-10-2022

Hereditary cancer in clinical practice

Mainstream genetic testing for women with ovarian cancer provides a solid basis for patients to make a well-informed decision about genetic testing.

08-09-2022

Expert review of clinical immunology

Bradford Hill and breast implant illness: no evidence for causal association with breast implants.

01-08-2022

Critical reviews in oncology/hematology

Challenges in breast cancer genetic testing. A call for novel forms of multidisciplinary care and long-term evaluation.

01-08-2022

Cancers

Prediction Models and Decision Aids for Women with Ductal Carcinoma In Situ: A Systematic Literature Review.

02-07-2022

Familial cancer

Positive experiences of healthcare professionals with a mainstreaming approach of germline genetic testing for women with ovarian cancer.

01-07-2022

Journal of medical genetics

Oncologist-led BRCA counselling improves access to cancer genetic testing in middle-income Asian country, with no significant impact on psychosocial outcomes.

01-03-2022

Cancers

The Feasibility of Implementing Mainstream Germline Genetic Testing in Routine Cancer Care-A Systematic Review.

19-02-2022

Health expectations : an international journal of public participation in health care and health policy

Development of a patient decision aid for patients with breast cancer who consider immediate breast reconstruction after mastectomy.

01-02-2022

Cancers

Light Therapy for Cancer-Related Fatigue in (Non-)Hodgkin Lymphoma Survivors: Results of a Randomized Controlled Trial.

30-09-2021

Journal of clinical epidemiology

A questionable factor structure of the multidimensional fatigue inventory in the general Dutch population.

01-09-2021

Cancers

Preferences of Treatment Strategies among Women with Low-Risk DCIS and Oncologists.

06-08-2021

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Professional patient navigation in a hospital setting: a randomized controlled trial.

01-04-2021

Journal of biological rhythms

Cancer-related Fatigue in Relation to Chronotype and Sleep Quality in (Non-)Hodgkin Lymphoma Survivors.

01-02-2021

Breast (Edinburgh, Scotland)

Decisional conflict in breast cancer patients considering immediate breast reconstruction.

01-02-2021

JMIR research protocols

Long-Term Morbidity and Health After Early Menopause Due to Oophorectomy in Women at Increased Risk of Ovarian Cancer: Protocol for a Nationwide Cross-Sectional Study With Prospective Follow-Up (HARMOny Study).

22-01-2021

Hereditary cancer in clinical practice

Recontacting non-BRCA1/2 breast cancer patients for germline CHEK2 c.1100del pathogenic variant testing: uptake and patient experiences.

19-01-2021

Familial cancer

Report of the fifth meeting of the European Consortium 'Care for CMMRD' (C4CMMRD), Leiden, The Netherlands, July 6th 2019.

01-01-2021

European journal of human genetics : EJHG

The uptake of predictive DNA testing in 40 families with a pathogenic BRCA1/BRCA2 variant. An evaluation of the proband-mediated procedure.

01-08-2020

Familial cancer

Patient-reported burden of intensified surveillance and surgery in high-risk individuals under pancreatic cancer surveillance.

01-07-2020

Psycho-oncology

Unmet information needs of men with breast cancer and health professionals.

01-05-2020

European journal of cancer care

The "Psychosocial Aspects in Hereditary Cancer" questionnaire in women attending breast cancer genetic clinics: Psychometric validation across French-, German- and Spanish-language versions.

01-01-2020

Pancreatology : official journal of the International Association of Pancreatology (IAP) ... [et al.]

Pancreatic cyst surveillance imposes low psychological burden.

01-12-2019

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer

Evaluating a professional patient navigation intervention in a supportive care setting.

01-09-2019

BMC medical informatics and decision making

The impact of an online patient decision aid for women with breast cancer considering immediate breast reconstruction: study protocol of a multicenter randomized controlled trial.

19-08-2019

Familial cancer

Genetic counselling of young women with breast cancer for Li-Fraumeni syndrome: a nationwide survey on the experiences and attitudes of genetics professionals.

01-04-2019

Familial cancer

The uptake of presymptomatic genetic testing in hereditary breast-ovarian cancer and Lynch syndrome: a systematic review of the literature and implications for clinical practice.

01-01-2019

BMC cancer

Light therapy as a treatment of cancer-related fatigue in (non-)Hodgkin lymphoma survivors (SPARKLE trial): study protocol of a multicenter randomized controlled trial.

10-09-2018

The Journal of clinical endocrinology and metabolism

High Fear of Disease Occurrence Is Associated With Low Quality of Life in Patients With Multiple Endocrine Neoplasia Type 1: Results From the Dutch MEN1 Study Group.

01-06-2018

European journal of cancer care

Phase III study of the European Organisation for Research and Treatment of Cancer satisfaction with cancer care core questionnaire (EORTC PATSAT-C33) and specific complementary outpatient module (EORTC OUT-PATSAT7).

01-01-2018

JAMA oncology

Baseline Surveillance in Li-Fraumeni Syndrome Using Whole-Body Magnetic Resonance Imaging: A Meta-analysis.

01-12-2017

JAMA oncology

Surveillance of Dutch Patients With Li-Fraumeni Syndrome: The LiFe-Guard Study.

01-12-2017

Journal of surgical oncology

Rapid genetic counseling and testing in newly diagnosed breast cancer: Patients' and health professionals' attitudes, experiences, and evaluation of effects on treatment decision making.

01-12-2017

DCIS knowledge of women choosing between active surveillance and surgery for low-risk DCIS.

Psychosocial issues of individuals undergoing surveillance for increased risk of melanoma and pancreatic cancer due to a germline CDKN2A variant: A focus group study.

Quality of life issues in patients with ductal carcinoma in situ: a systematic review.

Efficacy of a Decision Aid in Breast Cancer Patients Considering Immediate Reconstruction: Results of a Randomized Controlled Trial.

Attitudes toward genetic testing, family planning and preimplantation genetic testing in families with a germline CDKN2A pathogenic variant.

Recurrence of breast cancer after reconstruction with macro-textured silicone breast implants: A retrospective cohort study.

An LC-MS/MS-based method for the simultaneous quantification of melatonin, cortisol and cortisone in saliva.

Does a proactive procedure lead to a higher uptake of predictive testing in families with a pathogenic BRCA1/BRCA2 variant? A family cancer clinic evaluation.

Strategies to increase survey participation: A randomized controlled study in a population of breast cancer survivors.

Men with metastatic prostate cancer carrying a pathogenic germline variant in breast cancer genes: disclosure of genetic test results to relatives.

Active surveillance versus treatment in low-risk DCIS: Women's preferences in the LORD-trial.

Effects of a pre-visit online information tool about genetic counselling for ovarian cancer patients, a randomized controlled trial.

Surgical Oncologists and Nurses in Breast Cancer Care are Ready to Provide Pre-Test Genetic Counseling.

The Areola study: design and rationale of a cohort study on long-term health outcomes in women with implant-based breast reconstructions.

Patients' experiences with pre-test genetic counseling provided by breast cancer healthcare professionals: Results from a large prospective multicenter study.

Mainstream germline genetic testing in men with metastatic prostate cancer: design and protocol for a multicenter observational study.

Psychological impact of referral to an oncology hospital on patients with an ovarian mass.

Single-item chronotype is associated with dim light melatonin onset in lymphoma survivors with fatigue.

Mainstream genetic testing for women with ovarian cancer provides a solid basis for patients to make a well-informed decision about genetic testing.

Bradford Hill and breast implant illness: no evidence for causal association with breast implants.

Challenges in breast cancer genetic testing. A call for novel forms of multidisciplinary care and long-term evaluation.

Prediction Models and Decision Aids for Women with Ductal Carcinoma In Situ: A Systematic Literature Review.

Positive experiences of healthcare professionals with a mainstreaming approach of germline genetic testing for women with ovarian cancer.

Oncologist-led BRCA counselling improves access to cancer genetic testing in middle-income Asian country, with no significant impact on psychosocial outcomes.

The Feasibility of Implementing Mainstream Germline Genetic Testing in Routine Cancer Care-A Systematic Review.

Development of a patient decision aid for patients with breast cancer who consider immediate breast reconstruction after mastectomy.

Light Therapy for Cancer-Related Fatigue in (Non-)Hodgkin Lymphoma Survivors: Results of a Randomized Controlled Trial.

A questionable factor structure of the multidimensional fatigue inventory in the general Dutch population.

Preferences of Treatment Strategies among Women with Low-Risk DCIS and Oncologists.

Professional patient navigation in a hospital setting: a randomized controlled trial.

Cancer-related Fatigue in Relation to Chronotype and Sleep Quality in (Non-)Hodgkin Lymphoma Survivors.

Decisional conflict in breast cancer patients considering immediate breast reconstruction.

Long-Term Morbidity and Health After Early Menopause Due to Oophorectomy in Women at Increased Risk of Ovarian Cancer: Protocol for a Nationwide Cross-Sectional Study With Prospective Follow-Up (HARMOny Study).

Recontacting non-BRCA1/2 breast cancer patients for germline CHEK2 c.1100del pathogenic variant testing: uptake and patient experiences.

Report of the fifth meeting of the European Consortium 'Care for CMMRD' (C4CMMRD), Leiden, The Netherlands, July 6th 2019.

The uptake of predictive DNA testing in 40 families with a pathogenic BRCA1/BRCA2 variant. An evaluation of the proband-mediated procedure.

Patient-reported burden of intensified surveillance and surgery in high-risk individuals under pancreatic cancer surveillance.

Unmet information needs of men with breast cancer and health professionals.

The "Psychosocial Aspects in Hereditary Cancer" questionnaire in women attending breast cancer genetic clinics: Psychometric validation across French-, German- and Spanish-language versions.

Pancreatic cyst surveillance imposes low psychological burden.

Evaluating a professional patient navigation intervention in a supportive care setting.

The impact of an online patient decision aid for women with breast cancer considering immediate breast reconstruction: study protocol of a multicenter randomized controlled trial.

Genetic counselling of young women with breast cancer for Li-Fraumeni syndrome: a nationwide survey on the experiences and attitudes of genetics professionals.

The uptake of presymptomatic genetic testing in hereditary breast-ovarian cancer and Lynch syndrome: a systematic review of the literature and implications for clinical practice.

Light therapy as a treatment of cancer-related fatigue in (non-)Hodgkin lymphoma survivors (SPARKLE trial): study protocol of a multicenter randomized controlled trial.

High Fear of Disease Occurrence Is Associated With Low Quality of Life in Patients With Multiple Endocrine Neoplasia Type 1: Results From the Dutch MEN1 Study Group.

Phase III study of the European Organisation for Research and Treatment of Cancer satisfaction with cancer care core questionnaire (EORTC PATSAT-C33) and specific complementary outpatient module (EORTC OUT-PATSAT7).

Baseline Surveillance in Li-Fraumeni Syndrome Using Whole-Body Magnetic Resonance Imaging: A Meta-analysis.

Surveillance of Dutch Patients With Li-Fraumeni Syndrome: The LiFe-Guard Study.

Rapid genetic counseling and testing in newly diagnosed breast cancer: Patients' and health professionals' attitudes, experiences, and evaluation of effects on treatment decision making.

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